BOSTON -- A group of parents nationwide are uniting to save their children. All of them are battling neuroblastoma, a rare form of childhood cancer. The families say there little research being done to find alternative treatments.

On Thursday, NewsCenter 5's medical editor Dr. Timothy Johnson shared the story of a Braintree family doing everything in their power to change that.

Boy, 4, Battles Neuroblastoma | Web: MagicWater | Will Lacey

On the day we caught up with Will Lacey, he was celebrating a birthday. He is 4 years old, and he just race cars. But once a week, he puts them aside to fight a disease he cannot understand.

"He's starting to question things now," said Dina Lacey, Will's mother. "He doesn't know."

"He's never had a non-cancer life. His whole life has been battling this disease," said Patrick Lacey, Will's father.

Will was 7 months old when he was diagnosed with neuroblastoma. Doctors said his cancer was intermediate giving up to a 90 percent chance of survival. But then came his relapse, and the devastating news.

"We were told in the fall of 2006 that Will was incurable, and we wouldn't be able to save his life," said Lacy.

Thirty-seven rounds of chemotherapy have not changed that prognosis. The treatment's toll on his body is unimaginable.

"The garbage truck that picked up Will's diapers in it was quarantined, because it set off radiation detectors at the transfer station," Lacey said. "Chemotherapy isn't the option that's going to save Will's life."

But saving his life is exactly what his parents are determined to do. They've joined forces with MagicWater. A national organization of families like the Laceys. These families are determined to fund research that will find new ways to fight the disease.

"We gave out grants in the first quarter and some of the doctors are testing things, and they looked very promising. It's not high dose chemo, it's FDA approved drugs that are on the shelf that have access to kids that have shown effectiveness," said Lacey.

Clear Channel has donated three billboards along Massachusetts highways to raise awareness. Will's picture graces all of them.

For now, 4 year old Will continues an experimental treatment, still unaware of what is going on. Unaware of the cancer waging war on his body. A war his parents are determined to win!

"He's not ready to stop. He's not ready to give up. And until he is, we're not going to stop searching for those answers," said Lacey.